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A Mother's Story

Tommy is a twin. He was born eight weeks premature, and he and his brother had mild Cerebral Palsy, but very little effect from it. At two, Tommy was talking with an excess of 200 words. He recognized everyone if you pointed to them in a picture. He was pretty much functioning normally.

Then at two and a half, he started to talk with what they call staccato, very calculated. Then words started to disappear. Then the crying started. I took him to a neurologist and they said it was called PDD, pervasive developmental disorder. Then it went to the next step and they called it autism. They said it was going so fast that it would be difficult to get him back. They said to just get him into an ABA program. That was the best we could do. I have a hard time with things like that. God didn't just make us, and then Ooops, something happened and we just accept it. I got online and I researched. I found the NIDS program by accident. Dr. Goldberg was the first doctor that said to me, I'll try, which meant unbelievable things to me. Then I did more research into NIDS and it made sense.

These children have pain. And when we have something wrong with us, we want someone to give us something to take away the pain. But when autistic children cry and cry and cry, they tell you, "Well, that's just what they do. That's just what they do." No! They don't do that. They are trying to tell us something is hurting, something is not right. He's saying, "I'm scared" and we don't listen. They tell us more and more things just by what they do if we listen. And the NIDS program gave me the next step beyond listening. As a parent, I was listening to him. I was hearing the pain and the fear but no one could help me plug it in to the other side. The NIDS program helped me do that.

I tell parents: Don't give up. Look at your child, look in their eyes. They're there. Tommy didn't hug back. I had a year of no hugs. I had a year of no voice, no sound. He didn't scream or cry. He would run into a wall and cut his head and no tears. We were at that low. And now when I pick him up and he wraps his legs and his around me it's worth a million. And I have people say to me you are spending so much money and insurance doesn't cover it. I love fighting insurance companies. I do well with that. Fight. They are worth it. That first hug.